Fresno Teen Shares Her Fight with Cystic Fibrosis Through Social - KMPH FOX 26 | Central San Joaquin Valley News Source

Fresno Teen Shares Her Fight with Cystic Fibrosis Through Social Media

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"I'm just stuck in this tiny little room; I am not allowed to leave."

This is a glimpse into the life of Elizabeth M.

A 17-year-old from the Valley who has been battling cystic fibrosis since she was four.

"I use to remember I would get a cough around Christmas time every year... thinking when is this cough going to go away and it just never really did."

It's a genetic condition that badly affects the lungs and can be fatal.

Elizabeth spends half her time in the hospital getting treatment.

When she isn't, she's online - blogging.

Her website is called "MylifewithCF" it's where she lets it all out.

"Its real, it's raw, it's as if you knew me."

A candid portrayal of days in the hospital, interviews with doctors and staff and life as a teenager dealing with being sick.

Inspired by the movie 65 Red Roses and the life of - Elizabeth was driven to tell her story.

"It helped me out a lot to make a decision that is so important that I thought maybe I can do something similar and help out other CFers who might need to make a decision or who want to feel like they are not alone."

Because she is so vulnerable to infections, Elizabeth spends a lot of time by herself in the hospital...with the computer as her only outlet.

"So it's a very isolated disease and there are no support groups for anyone with CF which is huge ... so it's hard not to feel alone."

But more than that, Elizabeth says she trying to spread awareness.

According to doctors cystic fibrosis affects 30,000 children and adults in the united states.

A thousand new cases are diagnosed each year.

The median age of survival for a person with cf is in the early 40's.

More awareness for Elizabeth translates to more research which can mean new hope.

"What I really feel the best about is that I am telling people who really didn't know what CF was. Telling them about it and getting them to care and donate or think I'm inspirational."

She hopes to someday turn her blog into a full non profit for the cause.

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