Fresno Teen Shares Her Fight with Cystic Fibrosis Through Social - KMPH FOX 26 | Central San Joaquin Valley News Source

Fresno Teen Shares Her Fight with Cystic Fibrosis Through Social Media

Posted:

"I'm just stuck in this tiny little room; I am not allowed to leave."

This is a glimpse into the life of Elizabeth M.

A 17-year-old from the Valley who has been battling cystic fibrosis since she was four.

"I use to remember I would get a cough around Christmas time every year... thinking when is this cough going to go away and it just never really did."

It's a genetic condition that badly affects the lungs and can be fatal.

Elizabeth spends half her time in the hospital getting treatment.

When she isn't, she's online - blogging.

Her website is called "MylifewithCF" it's where she lets it all out.

"Its real, it's raw, it's as if you knew me."

A candid portrayal of days in the hospital, interviews with doctors and staff and life as a teenager dealing with being sick.

Inspired by the movie 65 Red Roses and the life of - Elizabeth was driven to tell her story.

"It helped me out a lot to make a decision that is so important that I thought maybe I can do something similar and help out other CFers who might need to make a decision or who want to feel like they are not alone."

Because she is so vulnerable to infections, Elizabeth spends a lot of time by herself in the hospital...with the computer as her only outlet.

"So it's a very isolated disease and there are no support groups for anyone with CF which is huge ... so it's hard not to feel alone."

But more than that, Elizabeth says she trying to spread awareness.

According to doctors cystic fibrosis affects 30,000 children and adults in the united states.

A thousand new cases are diagnosed each year.

The median age of survival for a person with cf is in the early 40's.

More awareness for Elizabeth translates to more research which can mean new hope.

"What I really feel the best about is that I am telling people who really didn't know what CF was. Telling them about it and getting them to care and donate or think I'm inspirational."

She hopes to someday turn her blog into a full non profit for the cause.

  • Local NewsLocal NewsMore>>

  • Former 'Cops' TV Show Crew Member Talks About Omaha Police Shooting

    Former 'Cops' TV Show Crew Member Talks About Omaha Police Shooting

    A crew member for the TV show "Cops" died after he was shot by police while filming Omaha, Nebraska officers responding to an armed robbery Tuesday night.Police say 38-year-old Bryce Dion, a sound man working for the showwas shot once during a shootout between three officers and one suspect in a Wendy's restaurant.News of the shooting hits close to home here in the valley.Several former television news photographers went on to work for the show at one time or another.Many were recruited by o...More >>
    A crew member for the TV show "Cops" died after he was shot by police while filming Omaha, Nebraska officers responding to an armed robbery Tuesday night.Police say 38-year-old Bryce Dion, a sound man working for the showwas shot once during a shootout between three officers and one suspect in a Wendy's restaurant.News of the shooting hits close to home here in the valley.Several former television news photographers went on to work for the show at one time or another.Many were recruited by o...More >>
  • SCAM ALERT: Thieves Are Targeting The Elderly, How To Avoid Being A Victim

    SCAM ALERT: Thieves Are Targeting The Elderly, How To Avoid Being A Victim

    There's another scam alert you need to be aware of. This one involves thieves telling elderly victims they won a million dollars and then taking their money instead.
    More >>
    There's another scam alert you need to be aware of. This one involves thieves telling elderly victims they won a million dollars and then taking their money instead.

    More >>
  • Clovis Unified Baseball Coach Recovering From West Nile

    Clovis Unified Baseball Coach Recovering From West Nile

    Clovis Unified Teacher and Coach Tim Thiessen has been in the fight for his life against the West Nile Virus. But he's on the mend and KMPH Fox 26 News spent Wednesday afternoon talking about his recovery at San Joaquin Valley Rehabilitation Hospital."Well I'm coming back. Praise God I'm coming back." Thiessen is a man of faith who spent nearly the entire month of August battling West Nile. Thiessen was in Southern California at a baseball clinic when he began to feel ill. "The ceiling starte...More >>
    Clovis Unified Teacher and Coach Tim Thiessen has been in the fight for his life against the West Nile Virus. But he's on the mend and KMPH Fox 26 News spent Wednesday afternoon talking about his recovery at San Joaquin Valley Rehabilitation Hospital."Well I'm coming back. Praise God I'm coming back." Thiessen is a man of faith who spent nearly the entire month of August battling West Nile. Thiessen was in Southern California at a baseball clinic when he began to feel ill. "The ceiling starte...More >>
Powered by WorldNow
All content © Copyright 2000 - 2014 WorldNow and KMPH. All Rights Reserved.
For more information on this site, please read our Privacy Policy and Terms of Service.